January has been a mixed month for us as a family.
My husband - Ryan's Grandpa - has been in hospital for a while so the
children's (and everyone else's) routine has been upset but hopefully
everything will get back to normal again now.
Yes he really does have a very odd hat on.
The potty training is coming on in leaps and bounds,
Ryan wants to be dry and not wear a nappy most of the time. Like
all children there is not much warning and when he says "wee"
he means NOW and the potty has to be in place very quickly, but he is very
pleased with himself. His Cerebral Palsy also affects
the warning sensations telling him that he needs to go.
This is the identity pic from his "disabled
badge" for the car. At least the badge means that we can
park in the disabled places and not have to carry him what seems like
miles sometimes for clinics and things. Have you noticed
how few places have areas for push chairs and buggies!
The main problem at the moment is discipline.
When Rebecca goes to do something that's naughty you can say
"No" to her, she stops (well most of the time) and you can try
to explain to her that she must not do that, you can tell her about things
being "hot" or that the knife will "hurt".
Rebecca can understand abstract concepts, Ryan seems unable to understand.
He does not understand the difference between giving his sister a hug and
squeezing her and making her cry. At one point both Debbie and
Rebecca were covered in scratch marks - Ryan was trying to tickle
them and just did not see what he was doing wrong.
to pull the wallpaper off of the wall in my passage, he did not hide what
he was doing, in fact he wanted me to join in because it was fun.
How do you explain to a child like that, that what he is doing is wrong,
that his behaviour is not acceptable. Ryan does not want to
hurt anyone or upset us but he has to be taught how to behave while he is
still young and small enough to be restrained physically. When
I did manage to teach him that he must not pull the wall paper off of the
walls in my passage I was quite pleased with myself. Then Ryan
showed me that I still had to teach him that this "rule" applied
to other walls as well !!!
For Christmas, among the many gifts they had, were
wooden puzzles. You know the kind, where the child has to fit
the piece into the relevant shaped hole. Rebecca had puzzles
with various irregular shaped pieces, cars, ships, trains etc Ryan had a
puzzle with four shapes, a Square, triangle, circle and star.
He can do this puzzle and enjoys it. They also have books
which feature these same four shapes. Each page of the book has the words
of a song and a shape printed on it. On a panel down the edge
of the book the same shapes appear and when a shape is pressed the music
for the song on that particular page is played. Ryan loves the
books and will turn to the page he wants then press the relevant shape for
you to sing along to the music. Rebecca gets fed up after a
short while and just wants to press all the shapes (or with the wooden
puzzles she'll pretend to try to fit pieces into the wrong places) Ryan
gets very upset at that and wants to take the book away from her until she
will press the right shape for the page. He does not
exhibit obsessive behaviour much but there are some things that have to be
done in certain set ways, otherwise he gets very upset.
Here they are playing with more Christmas gifts - a tent
and play tunnel.
dog wanted to play in the tent and tunnel with them but was just too big
so he was upset and needed a cuddle!
Well we've just had Ryan's 4th birthday.
I say WE'v had because he did not realize that it was his birthday.
A teacher at the unit he goes to said that with children like Ryan we
celebrate 4 years of having him because that is worth celebrating.
She is right.
Photos at birthday parties are never very good (well not when I take them
anyway). Children will not stay still! Here is Ryan with
a neighbour's little girl.
Ryan tries very hard to talk now.
He will (try to) repeat words you say to him. His speech is
very hard for anyone else to understand, unless you are used to hearing it
all the time it sounds like total rubbish. We have to act as
translators sometimes for him (Rebecca is still the best person at that). Of course his vocabulary is
limited and we are not sure how much he really understands.
On 24th May the school that houses the unit Ryan attends held a kind of
presentation afternoon. Children in various classes in the
school received prizes and certificates for achievements.
Ryan was presented with the
school Kindness Medal and a Citation. It was the first time a
child from the special unit had received anything like this and the school
made a big fuss of it. This is a picture of Ryan on his mum's
lap, he is holding his medal. He did not actually understand what the
medal was for but he knew he was being made a big fuss of and that
everyone was pleased with him.
Ryan is being "statemented" this
just means that a statement of his special educational needs is made .
Hopefully this will mean that he will have a classroom teaching assistant
assigned to him. He will not be able to travel up through the
normal classes in school but we are lucky in that Bodmin (where we live)
has "special needs" educational facilities all the way through
the school system. The main thing of course is to be positive
and when people say things like "well he'll never be able to read and
write will he" we just reply "and what makes you so
certain of that?". Debbie (Ryan's mum) says he will get a
School Certificate of some type, we don't know in what yet but there must
be something he can do. If you could get a certificate for
hugs and kisses he'd win it now.
Ryan in his pushchair, Rebecca walks, Ryan still needs the
Ryan and Rebecca with their mum and their aunty Beth
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