I'm sorry that last year seemed to get rather lost.
We will try to do a bit better this year.
Christmas was good. Mind you it did show
again the difference between Ryan and Rebecca. Rebecca was
looking forward to Christmas, she talked about Father Christmas (Santa
Claus) and told us all how good she had been all year !.
Ryan had a pleasant surprise when Christmas morning came and there was a
stocking with little presents in it on his bed.
this was taken at Christmas, it shows the op site on his head.
He is doing so very well now.
Michael, Ryan, Debbie and Rebecca with Beth (our eldest daughter) and
Tony (her husband) in the foreground.
Me with Ryan Ryan
climbing over his uncle Tony
Ryan and his uncle Tony playing with a toy car, big
brother Josh looking on. the baby is Tristan, Beth and
In January Ryan started at his new school.
He goes to school in a taxi (with an escort) and comes home in the same
taxi with the same escort. He seems to have settled in and is
doing well there. We think its good that Rebecca is in a
different school to Ryan. She will not feel that she has to
look after him or watch over him or anything. She can have
her own friends and her own time. Her life is greatly
affected by the care that Ryan needs so she needs a break too.
Ryan has an ear infection, again ! He has
medicine but it means that he is effectively totally deaf again.
He seems to get ear infections quite often and they take ages to clear
up. He hates having ear drops so it can be quite a problem
getting them in but it has to be done.
is a photo of Ryan playing with his cousin Tristan on Tristan's first
School Sports Day. What a wonderful time.
Rebecca had a half day off of school to watch with us. The
weather was lovely and the whole event was just great. Ryan
took part in all the events with his link class. Most
of the time he is in the Special Educational Needs Unit but he joins his
link class (his age/peer group) for art and music and things that do not
require him to "keep up" with the other children.
children in his class are really good with him, helping him to run and
holding his hand. There is no fuss about him not being
wanted on a team, in fact when the children had to walk in pairs
holding hands there was a little scuffle as children vied for Ryan's
By way of experiment I'm trying a little video clip of
Ryan in a race click
here and I hope that you can see it. I have been
told that it should work but that it may take a while to load so please
be patient (it may take as long as a minute or two depending on the
speed of your connection) There is no sound as that would take even
longer. Remember this is a child who surprised the
"experts" by being able to walk.......... the
hands clapping at the end of the race belong to his mother Debbie.
Ryan is enjoying the summer doing the same things that
all the other children do, going to the beach, to the park and on days
out with the family. His vocabulary is improving all the
The rest of the year has passed very quickly.
Ryan's development continues in a very haphazard sort of way.
Sometimes he improves so much that its amazing at other times he seems
to be even going backwards.
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