bit of a frightening prospect - Ryan's Christmas present was a junior
quad-bike. He loves it though and with his safety hat and
his boots he should be OK. He is never out on it alone
Ryan has had a few problems this year. We
believe his shunt is not working properly and periodically blocks.
He has been in Treliske Hospital down here in Cornwall and Frenchay
Hospital in Bristol a few times. At the moment he seems fine
again so we all just take each day as it comes and are prepared for him
to be rushed off again at a moments notice. When he goes
into hospital his sister Rebecca comes here to stay with us.
She gets worried about Ryan and being 8 years old now she
understands a lot more than she used to and asks a lot more questions.
We try to explain as best we can and are always honest with her about
what is happening.
A few photos -
February, Ryan does a floor puzzle by himself
and here he is skating, we realize he will never be
proficient at it, he needs someone to hold him up but we all try to give
him as 'normal' and full a life as possible
here it is his daddy and his aunty helping him, he does love it in
short bursts - he gets cold quickly so he has lots of rests off of the
He is with his daddy in this photo.
We celebrated his 9th birthday in April with a party
to which he invited children from his special unit.
Here he enjoys a game with his friends
then a picnic tea.
We notice that there are now no children of his
age in the unit, all the children are considerably younger than him, the
older children have all moved on, most of them having been integrated
into main stream schooling. This is not an option for Ryan
so special schools are being looked at.
In June he was on a trampoline at his cousins birthday
on his own, then on another trampoline with his cousins
July is Carnival time here in Bodmin and Ryan enjoys a
fair ground ride with his sister. We all try not to make her
feel responsible for him but she is always there, looking out for him.
In August we had some lovely weather and Ryan played
on his scooter
and generally had a good time
here he helps his mum with a bar-b-q
In September he went swimming with us all
and there were family birthday parties
Ryan with me, and with his grandpa - doing "something
with daddy at his mummy's birthday and enjoying sparklers
at his sisters
He loves my scooter and it saves him trying to walk,
getting tired and falling down lots or having to be carried.
We don't want to get a wheelchair for him, its much easier this way.
He can have some independence walking then have a little rest riding
Here he is with big brother Sam and little
However carefully you dress him he manages to look a
bit of a wreck within minutes. A typical little boy !
Return to top of page