Problems

Home Hydrocephalus First Year 1999 2000
2001 2002 2003 2004 2005
2006 2007 2008     2009  2010
2011 2012
Special Mothers Useful Links Problems Contact Us  
You can click on any picture to view the full size photo.   If you then click on that photo again you may see it even larger.
Use your browsers "Back" button to return to the page.

It seems that for quite a long time no one thought that there could be behavioural problems associated with Hydrocephalus but then a rather switched on lady (to whom we must all be eternally grateful) realized that she was being asked the same questions by a lot of parents.  

You know, the kind of questions that start "can Hydrocephalus cause a child to - - - "  and "does anyone else's child - - -".   the initial answer to questions like these was "no, Hydrocephalus does not affect that" but this lady started to wonder and looked into it.   Now it is believed that Hydrocephalus can and does affect behaviour.  

We now know that Ryan is not the only child who seems to have little interest in eating.   He does not seem to feel hunger, neither do a lot of Hydrocephalics.   There are a variety of "eating problems" and basically everyone seems to agree that it's best not to make an issue of it, so what, if your child will only eat baked beans.   Don't let him or her know that it worries you (easier said than done we know) but it does help if you try to relax about it - honest.

Ryan's reaction to pain can appear to be delayed and sometimes non existent.   This also seems to be quite common in Hydrocephalics. 

If there are any problems you've come across please let us know.   Possibly someone else has had the same problem and would be willing to compare notes.   If you've also found a way to solve (or get around) it then that could be very helpful to others.    Above all it seems do not just accept what doctors and "experts" tell you.   At our last appointment with the main pediatrician in charge of Ryan's case (we see loads of specialists but this lady was in overall charge) she said that Ryan was doing far more than it was expected he would ever be able to do.   So remember that and don't accept defeat.   YOUR child will possibly do more than expected as well - who knows what each child is capable of given the chance?   I have been known to look at Ryan and say "he's not doing bad for a vegetable, is he"   That may sound harsh and nasty but if we had listened to and believed everything we had been told by the  "experts" that is just about all we would have expected of him.

Return to top of page