It seems that for quite a long time no one thought that
there could be behavioural problems associated with Hydrocephalus but then
a rather switched on lady (to whom we must all be eternally grateful)
realized that she was being asked the same questions by a lot of parents.
You know, the kind of questions that start "can
Hydrocephalus cause a child to - - - " and "does anyone
else's child - - -". the initial answer to questions like
these was "no, Hydrocephalus does not affect that" but this lady
started to wonder and looked into it. Now it is believed that
Hydrocephalus can and does affect behaviour.
We now know that Ryan is not the only child who seems to
have little interest in eating. He does not seem to feel
hunger, neither do a lot of Hydrocephalics. There are a
variety of "eating problems" and basically everyone seems to
agree that it's best not to make an issue of it, so what, if your child
will only eat baked beans. Don't let him or her know that it
worries you (easier said than done we know) but it does help if you try to
relax about it - honest.
Ryan's reaction to pain can appear to be delayed and
sometimes non existent. This also seems to be quite common in
If there are any problems you've come across please let
us know. Possibly someone else has had the same problem and
would be willing to compare notes. If you've also found a way
to solve (or get around) it then that could be very helpful to others.
Above all it seems do not just accept what doctors and "experts"
tell you. At our last appointment with the main pediatrician
in charge of Ryan's case (we see loads of specialists but this lady
was in overall charge) she said that Ryan was doing far more than it was
expected he would ever be able to do. So remember that and
don't accept defeat. YOUR child will possibly do more than
expected as well - who knows what each child is capable of given the
chance? I have been known to look at Ryan and say "he's
not doing bad for a vegetable, is he" That may sound
harsh and nasty but if we had listened to and believed everything we had
been told by the "experts" that is just about all we would
have expected of him.